Sunday, August 22, 2004

SURRENDERING TO LUPUS

As I approach a time in my life when I see a certainty of an end I look at my surroundings.  Not just my immediate surroundings. 

But everything that encompasses me.  I examine with curiosity the expressions on the faces of indivduals with whom I make contact.  It interests me to see how people react to me.  How I am feeling on any particular day has affected others.  I am not saying that I think I have any particular domination or control over others.  I am not that stuck on myself to believe that this could be possible.  What I think is that my actions do have some sort of impact, imprint, repercussion or mark; if you willl; over how people will react to me.  How I am feeling has a great pull on how I am treated and how I treat others.

I see it in my daily activity.  My vigor plays an important role in what I do and how I do it.  That is where my Lupus comes into play.  If I am having a particulary horrible Lupus day my energy force will definitely be sluggish.  Lupus takes away so much from me on those days. Most of my goals at times like this are unattainable.  As much as I try to retain some sense of normalcy in my life I find it an impossible task to complete.  Today was one of those days.  I had to surrender today to Lupus.  Actually, this entire week was surrendered to Lupus. There was absolutely nothing I could do to stop this from happening.  I learned a lesson early on that I could not battle with Lupus.  That I had to put out the "White Flag" and merely surrender this week to the villian Lupus.  Once I learned this I no longer struggled with the pain and suffering that my enemy Lupus brings me.  I can give in and deal with it.

I simply accept the vagary of Lupus and do what needs to be done to conserve my energy.  These such days are happening much more often now.  What am I to do?  Not much I guess?  I just have to learn to accept these kinds of days and weeks.  And, try to have a good outlook.  And, keep looking forward to the better days.  The days when my bang, drive, getup, get-up-and-go, go, pep, punch (LOL) is somewhat like it used to be.  And, that's when I cram everthing into a day or a week or a month.  That's when I don't remember that I am sick. Those are the times when I take long walks. When I dance around the house.  I go outside and tend to my garden.  I see friends.  I shop for shoes.  I do what regular people do every day.  Except that I cram it into a few short days.  I still love life.  It's on those days when I don't remember that I'm sick.  But, then I overdue it and then I start the process all over again. The pain, the paralizing fatigue.  The mouth ulcers.  The exploding head pain. The seizures. Do I need to go over the entire laundry list?

 

I WOULD NOT TRADE IT IN FOR ANYTHING IN THE WORLD!

I WOULD TAKE THE FEW GOOD DAYS/WEEKS.

AND KEEP DOING WHAT I DO.

I AM HAPPY TO WAKE UP EVERY DAY!!!

5 comments:

Anonymous said...

Lu,
What a beautiful prayer...
I WOULD NOT TRADE IT IN FOR ANYTHING IN THE WORLD!

I WOULD TAKE THE FEW GOOD DAYS/WEEKS.

AND KEEP DOING WHAT I DO.

I am really hoping that this week goes much better for you. (((((HUGS)))))

Anonymous said...

Lu,you have dignity and courage,That brings me to tears.You are so brave to know,where it all ends.With your open mind,I have no dought that you live your life to the fullest.As you said,I look at my surroundings.Quote from your journal.A Woman should have one freind,who always makes her laugh and one who lets her cry.Lu I have had 3 heart surgerys and I am waiting for a lung,and my time is up,but every day that Jesus allows me to hug my mother,children and grand children,my life is complete,one day at a time.Lu take care of your self and may Jesus be with you. Patty Ann

Anonymous said...

LuAnne, You have accepted Lupus as it has taken over our bodies. I have started using a phrase when someone asks me how I feel. I always say "Great". That stops the endless questions that I don't want to answer. Most people don't understand anyway. I'm sick and anyone can tell when they look at me, so what kind of answer do they expect? Certainly not the one I give them.

Lupus can't be controlled and nothing we can do will ever do that, but try telling someone you feel great you would be surprised how shocked they are. I chuckle under my breath when I see the look on their face.

I don't want to talk about Lupus to a person I barely know because people don't understand and I don't want to scare them off, which happens, because they think they might catch it just by being around me. We have a disease and I have lost most of my friends because of this. It does become a lonely disease. But, I have most of my family, my brothers and sister, aunts and uncles. Oops, my sweet husband and children, and grandchildren. They know how bad it gets just from seeing me in a flare.

You've got a great attitude and I hope you continue to feel the way you do. It gets very hard somedays, but tomorrow is always another day. Maybe good, maybe not. But we all learn to handle what was dealt us.

Lupie Hugs,
PollyredfeatherParrot

Anonymous said...

Great entry, dear friend.  Glad you shared it - spread the word and all that!  People need to understand each other more...this is great at helping that!

Be well,
Dawn
http://journals.aol.com/princesssaurora/CarpeDiem/
Poetry:
http://journals.aol.com/princesssaurora/TouchofEmpathy/

Anonymous said...

Life should not be this hard. I wish they would find a cure for all these diseases. You would think if they can put a man on the moon, pay more attention to finding the cure for man's ills....Sandi http://journals.aol.com/sdoscher458/LifeIsFullOfSurprises