Oh Dear Lord I feel visciously horrible lately. And, it's just getting worse. Will my doctor ever find a medication that will truly help me? I can't believe this......... 
Eight people in like 250,000 or some ridiculous ratio like that and I have to be one of those eight people whose liver can not metabolize Imuran. My doctor is hopeful that my liver function tests will return to normal. But I am quite pissed off. Even though Imuran and prednisione didn't appear to be working, it must have been because now I am hurting big time. Those meds were really doing a good job of keeping my flares at bay. What am I supposed to do stop all of my medicine now? Most of my meds I have found out are metabolized through my liver. Geez, this is not making me happy. This is not a good thing.
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8 comments:
Lu Anne,
Thinking of you tonight and saying a prayer for you!
Hang in there!!! I wish that I could make it better!!!
Mary Louise
Hi sweetie. I can just hear your frustration. I have no advice as I have never experienced what you are going through. I have a suggestion and don't know if you've tried it but you may want to go to www.healthboards.com and search around. I've found the info to be wonderful. These boards are heavily moderated so the trash is kept out.
(((((((((((Lu dear)))))))))))) I am so sorry dear. I am praying fervently for you -- that there will be some answers for you that will help!
loving you
karyl
(((((((((Lu))))))))))))) You are in my thoughts and prayers. I hope the doctor is able to find something to work for you.
Love ya,
Susan
LU ANNE I HEAR YOUR FRUSTRATION, I WISH I COULD HELP, HOW MANY YEARS HAVE YOU HAD TO LIVE WITH THIS PAIN? WHAT ABOUT THE MARIJUANA THERAPY WOULD THAT HELP? I'LL PRAY FOR YOU AND THE DOCTORS HOPING THEY FIND SOMETHING FOR YOU
(((((((LuAnne)))))))))) Oh dear, you must be so frustrated now! Please know that I'm praying for you dear, every day. Miss you on the board!
Melissa
I will put you on my prayer list. I too hve the dreaded Lupus. It sucks. I also understand about the idiots who think just because you don't look sick - you must not be. I hope you have a good day. I know sometimes they are few and far between. I am 41 and was diagnosed when I was 17. Since that time my two sisters have also been diagnosed. We all are affected differently and different times. So "eat a bugger" to the woman who was so ugly to you. I would love to talk to you sometime - my email is rfo38@aol.com
Lu, I don't have my own journal but I do read several people who have Lupus and keep journals.I find education and direction for my daughter and me. I never imagined getting so much more. I just wanted you to know how smart I think you are. The time you have taken to help others with the information on lupus and the feelings and struggles you have gone through and are still going through mean so much to me. It really helps me deal with many things I am going through myself. My daughter has lupus . She is 26 and it has been a year now since her diagnosis. I don't know what I would have done without people like you and Lorretta. So please know how much I truly appreciate the time and the sharing of your life through these times has meant to me . It has helped me and my daughter. Thank you. Tillie
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