I'm lost in a fog that I cannot escape from. It's everywhere. My brain floats in this confusion and try as I may I feel trapped here.
Even though I try to live with this enemy called Lupus, I have surrendered more often than I wanted to. It's difficult to hold your head up when it physically is weighted down. When you cannot think. Therefore, unable to act.
Every muscle and joint in my body feels shackled. The perplexing fatigue saddens my life.
I understand that this will pass. I understand that some time whether it be soon or not that I will feel better. But that does not help me now.
I hate Lupus.
I know that this is because of my recent bout with pneumonia. But new things have happened. And, I find it difficult. Just when I have learned to live with what I think lupus has done, there are new and unpleasant things. My voice is raspy. Its been this way for weeks now. I am worried that this will not go away. Even with my doctor telling me it will, I don't think so.
I will get through this just as I have gotten through everything else. It still sucks.
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13 comments:
I am so sorry it is so hard for you. I have come to hate Lupus, too, and I don't even have it! I hope the brain fog passes soon. I'll keep you in my thoughts. Margo
I'm am so sorry for your pain. I will pray for you. You have a great Easter. I hope the raspy voice does get better. I'm sure it will.
Lu, may the Lord bless your heart dear, I'm so sorry. I am praying for you.
loving you
karyl
So sorry you are going through this. I am praying for you today.
Krissy
Oh Lu.... I so feel for you and your struggle... I am praying for your health and happiness.
be well,
Dawn
I hate lupus too, and it sucks.
>P
(((((Healing Hugs)))))
With Love,
Loretta
I am so sorry you feel bad...I have been feeling the same way...I am constantly telling everyone that I am sorry...I really just can't think straight...my constant pain is killing me...When you say every muscle and joint feels shackled and the fatigue is saddening your life...I so can relate right now...Makes me feel like a constant complainer...I have RA....and my neck is a wreck...I know it does not compare with Lupus...but...I do understand how you feel...Hugs...you are in my prayers...I so pray that you will be free of this flare and feel rejuvinated..GBU,TerryAnn.
Luanne, know it is tough with what you are going through. Have a dear friend that has Lupus amongst other health problems, but she's determined it won't keep her down and it hasn't. I have my personal motto "No one or nothing will get me down" and that is what I strive for daily, feel free to use my motto. I deal with heart problems, but so does a lot of others and we just have to make the best of whatever health situation we have. I'm too stubborn to let it rule me....It's easy to allow yourself to get into a "Fog" as you put it, use my motto, don't let it pull you down like that. Be a figther dear, you'll come out the winner for being one. AJ
Hi ,,,,,,,,, Im Tammy from SC.. I am a 41 year old Mom to 5 and Grandmom to 6. I was siagnoised with Lupus 3 weeks ago. My arms chest and now feet are cover in sores. I also break out in bruises for no reason. Good Luck!
I am so very sorry hun, I pray for you all the time. I'm sure you can get through all of this. Your so strong.
Just wanting to let you know i am praying for you friend...hugs,TErryANn
LU, I haven't communicated in a while and for some strange reason this last post, IN APRIL! just came via e-mail to let me know you had added a new entry??????????? Please, I know how sick you are, but please just write, "ok", or something to let us know that you are home as opposed to in the hospital. 2 months, I am worried. Or have hubby let us know your status. Or write phone # in e-mail and I can call you?
Hi Louanne,I just read your blog journal and I sincerely hate that you're having to deal with this horrible disease called Lupus. I've made a new friend online who also suffers from Lupus,her name is Louisa.She lives in California.She was just telling me last night about her problems with it. I'm so sorry that you guys have to deal with that and have such a hard time living a normal life. I'd like to be your friend as well if I may. I live in N.C. and my name is Diana Wright.I'm 57 years old. You are very blessed to have such a devoted husband,Louisa's hubby walked out on her when she got so sick. My heart goes out to both of you girls! I will keep both of you in my prayers and ask God for a miracle healing for you guys. Please let me know if I can be your new friend,well,if you are able to that is. O.K. try to keep your spirits up as much as possible and I hope to talk to you soon. Your new friend and sister in Christ,Diana Wright in Raleigh,N.C.
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