Thursday, September 30, 2004

FUN SURVEY

This survey is from TRACY. ( I COPIED IT FROM http://journals.aol.com/lrttklly/LupusLeftovers/entries/270)

You should really read Loretta's journal it is something else. She is really one talented writer.

http://journals.aol.com/tdain2003/WarehouseofUselessKnowledge/

"...Twenty QuestionsI got these questions from Danielle... check out her journal... it's amazing!  And I love this font of hers!

1: Grab the book nearest to you, turn to page 18, and find line 4. Write down what it says:

tudes, behaviors, lifestyles, and values, concerning women's sexuality, A (The Christian Woman's Guide To Sexuality ~ Debra Evans)

2: Stretch your left arm out as far as you can. What do you touch first?

The love seat in my living room.

3: What is the last thing you watched on TV? 

Judging Amy
                           
4: WITHOUT LOOKING, guess what the time is:

     2:30 PM

5: Now look at the clock, what is the actual time?

      2:07PM


6: With the exception of the computer, what can you hear?

    A fan, my husband playing a video game (he's off today), men working outside.


7: When did you last step outside?

This morning.

8: What are you wearing?

Sweat pants, tee shirt

9: Did you dream last night?

Don't remember

10: When did you last laugh?

Just before, I make Gary laugh all the time.  Thus I laugh too.

11: What is on the walls of the room you are in?

Grandma's Norman Rockwell and Hummel plate collection, Gary's Grandfather's painting of Thomas Jefferson's home, antique mirror, more antique plates, antique brass port hole and propeller and various ship collectibles.  And, of course my thimble collection in a shadow box. (It's a big room ~ living room and dining room combination.)


12: Seen anything weird lately?

Me!!!, do I count?

13: What are you thinking about right now?

Wondering if I am weird or not, LOL

14: What is the last film you saw?

Who remembers?  I always fall asleep 5 minutes into any thing.

15: If you became a multi-millionaire overnight, what would you buy first?

My own home.

16: Tell me something about you that I don't know:

I like to eat frosting out of the can.

17: If you could change one thing about the world, regardless of guilt or politics, what would you do?

Oh Geez, the pressure of an answer.  I have to get back to you on this.


18: Imagine your first child is a girl, what do you call her?

Autumn ~~ Gary wouldn't let me name Lauren Autumn


19: Imagine your first child is a boy, what do you call him?  I did name him what I wanted to.....Gary


20: If you could have one wish, what would it be?

Peace of mind

ER VISIT or IF YOU THINK YOU ARE PREGNANT PLEASE TELL THE TECHNOLOGIST

Many of the beautiful photos can be found here in my journal are from this site.  Photo courtesy of GeekPhilosopher.com . It's a beautiful site with interesting pictures on it.  See the link under my favorite sites to the left.

Today I spent the day in the ER.  Didn't really want to go but it was something that had to be done.  I was experiencing severe lower left sided abdominal pain.  I got to the ER and they triaged me within 10 mintues.  Once they realized the extent of my pain they put me on a gurny and treated my pain immediately.  They know me at the hospital (they see me at least once a month due to Lupus related stuff and seizure crap) and know my medical condition well.  They also know that when my pain becomes too much to bare that I begin to seize.  They have experienced that and now know it is important to treat my pain without delay.   The nurse I had was amazing, she found the hidden vein.  Not many people are able to do that.  I have only one vein left and she found it.  She was my favorite person yesterday and I made her aware of it.  I was put on fluids, given a shot of morphine, IV push.  Once that hit me I didn't know if it helped the pain or if I didn't care if I had pain any longer.  I was poked and prodded and wheeled here and there for tests.  They poked, I screamed.  They prodded I cried.  They apolozied.  All in all it was a harrowing experience.  Abdominal pain similiar to labor pains but constant.  Another shot of morphine because the doctor tells me that the diverticulosis is acting up.  The conversation goes like this now...Now remember I have just received a second shot of morphine....

Doctor.......... When was your last colonoscopy?

Me.................. June

Doctor.......... What did they find?

Me................... A whole bunch of crap and nothing.

Doctor........... What does that mean?

Me................... I have irritation because of the coumadin I take, the diverticular was okay, not too bad. I was told to eat fiber, psyllium.

Doctor........... Who did it?

Me................... Dr. Mancino

Doctor............. Okay............Follow up with him, your surgeon and your PCP, I'll give you antibiotics, and something for your pain. What do you usually take for pain?

Me.................... Morphine is good. Anyone else you think I should follow up with?

Doctor...............(Who looks at me strangly)

Me.......................I'm kidding, I take tylenol 4

Doctor.................Okay, the nurse will be right back to take out your IV and give you your discharge orders.

Me....................... You should laugh more. Laughing is a good thing.

The nurse comes in with my D/C orders and my scripts.  Cipro, Flagyl and Tylenol 4.  I fill none of them.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I follow up with the surgeon later that evening......

He checks my surgery site............Everything looks good.  The mesh has not moved.  Nothing wrong.  What's going on with the diverticulitis.  I say, Heck if I know.  We go through the whole colonoscopy script again.  He asks what I am taking for pain management.  I tell him right now ......... percocette.  He tells me that sometimes this pain can come from a herniated disk in the spin.  Let's do a lumbar MRI.  I say okay.  We talk a while about me and my other health problems.  We walk out of the room.  (Gary is with us.) I have to fill out some paper work. and I'm having trouble doing that.  I have a hard time.  Dr. Sabido says next time take 1/2 a perc.  I say oh you think its the med that is making me have problems.  Gary chimes in......... She is like this all the time.  He frowns and says....... "This is from the Lupus and the Antiphisiploid Syndrome?" I say, yup.  He puts one arm around me and tilts his head.  I smile.  He says he will call me with the results of the spinal MRI.  I guess he understands now about my auto immune disorders.  Maybe he will go home and read about it.  Maybe he should have done that before he operated on me.  Might have made him a little less arrogant.

 

Wednesday, September 29, 2004

MOM

MY MOTHER

M    is for the million things she gave me

O     means that she’s growing old

T     is for the tears she shed to save me

H    is her heart of purest gold

E     is for her eyes, with love-light shining

R    Means right and right she’ll always be Put them all together, they spell MOTHER!

A word that means the world me.                     Howard Johnson

 

Could you imagine growing up not having an amazing mother?  I couldn't.  Because I have one.  Mymother is loving, kind and compassionate.  It never fails to astound me how she can know by just the sound of my voice how I am feeling.  It must be the "Motherly Thing!"  I never believed in that before I was a mother.  I believe it now.  Because I can sense it with my own children.  My mother has taught me well.  She has taught me by example.  My mother is a kindhearted, tolerant and forbearing woman.  She is good-natured, sweet-tempered, and openhearted.  There is not a malicious bone in her body.  She is the most wonderful woman I know.  If I can be half the woman she is I will count myself  fortunate.  I know that sometimes I do things that she does not like.  We all make mistakes.  I know I have made some.  I also think that in many ways I am very much like my mother.  I think a lot like her.  We clean the same way and do many things the same. There is not a person who does not like my mother.  I love my mother dearly.  Don't get me wrong there are times when we can butt heads.  I find this happens because we are very much alike.  Maybe because we are two woman share one kitchen when she is in NY.  Maybe because we are two sensitive woman.  Maybe because we are two woman who are used to doing things are own way.  Or simply because we are just two woman.  I can confide in my mother and she understands.  She has been through a lot in her life.  She loves her children dearly.  And, they love her too.  Mom is tender, merciful, but most important she is "Saved."  She loves Jesus and prays for my salvation.  And, for that I will be forever thankful.  She has not given up on me.  She knows my short comings and loves me in spite of them.  She knows Jesus loves me in spite of them as well.  Thank you Mom for all you have done for me throughout my life.  I love you so much! You are what has made me the woman I am today.  I appreciate you so very much.  I think  you are so wonderful.

 

"Life began with waking up and loving my mother's face." —George Eliot

 

"A mother understands what a child does not say." --Jewish Proverb

 

JUST ME

Edith Sitwell:
I am not eccentric. It's just that I am more alive than most people. I am an unpopular electric eel set in a pond of goldfish.

Sounds good to me.  Webster defines eccentric as:

1 a : deviating from an established or usual pattern or style b : deviating from conventional or accepted usage or conduct especially in odd or whimsical ways
synonym see STRANGE

I am me.  Always have been me.  Strange, maybe.  Who cares really?  Weird, who knows?  I surely don't.  Remember, I'm a changeling, a Pure Angel.  The quizzes don't lie, right?  LOL  I have always "Walked to the beat of a different drummer!"  I particularly like the part of the quote that says that she is an unpopular electric eel set in a pond of goldfish.  Sounds a bit like me.  Not really as harsh as it reads, but basically true.  I'm not in attack mode like the electric eel.  But, I do stand out, that is right.  I can start a conversation with just about anyone.  Yup, ..........that's where the weird thing comes in (or the Pure Angel, however you choose to look at it).  I don't think its weird, others do.  Have always been like that.  As a little girl Mom says I would start conversations with people in Bohax.  Offering Little Old Ladies rides home in my Mother's car.  Just always stood out.  As a teenager they called me "Dumb Bunny!" Nah, I wasn't really.  Just chose my fights.  Just felt things weren't important enough to worry about.  I knew the deal, I knew who was who and what was what.  I wasn't as naive as they thought I was.     Wore clothing that was different.  Never wanted to wear a bra, shoes or anything that made me unconfortable.  I stood out.  My hair was very blonde.  My eyes were very big.  I looked at the world with wonder.  I remember standing on the corner of Flatlands Avenue and East 53rd.  It was this vast intersection.  Well, it was to me then.  You had to run across lanes of traffic to get across.  It seems like forever to get across that intersection.  There was this little island of concret situated in the middle of the vastness of the intersection.  Where you could stand if you didn't make it across traffic.  I remember just standing there waiting for the traffic to slow down.  That was the place I would stand while going to anywhere.  Yup, I stood out.  I did stand out. I do stand out. 

 

Tuesday, September 28, 2004

PURE ANGEL


pure
Congrats! Your a Pure Angel! Angels, as far as most of them go, are all compatabile creatures, but Pure ones simply are symbols of God. Pure Angels always appear when a child is born, when a rainbow is seen, or when someone shares their first kiss. They never grow old, an can appear in the shape of a naked woman with white, bold wings. Pure angels are the carriers of god, and show their love to everyone in the world.

This quiz stuff is so cool......  I like being a Pure Angel today. Check out the entire website. (See link below) You can take so many different types of quizzes. 

 http://quizilla.com/popular.html

Category X - The Changeling

The Changeling
Category X - The Changeling
Witty, amusing and a bit weird, you're welcomed into most social groups, even though you don't 'fit in' perfectly .

This was so cool.  And, so true........

http://journals.aol.com/lrttklly/LupusLeftovers/

http://journals.aol.com/cyberdancer1008/Cyberdancing/;jsessionid=E2384FA796DD6E8FC4201E15EE116630

http://quizilla.com/users/ProlixFootle/quizzes/What%20Type%20of%20Social%20Entity%20are%20You%3F/

Sunday, September 26, 2004

Brain Cells

Today was my first appointment with the Neuropsychologist.    I must say that it was a very interesting appointment.  Dr. Weiss was very nice.  He was basically the same age as me.   Give or take a few  years.  After we went over my medical history (which baffled him ~~ as it does everyone) we began the first part of the testing.  He asked me to name some words that began with the letter A.  Not such an easy task.  No names.  Just words.  I think I called out 4.  Maybe 5.  Not more than that.  Then he asked for words that began with the letter F.  Again I couldn't think.  I maybe got 4.  He asked me to name words that began with the letter S.  I did better this time.  Blurted out a bunch of S words.  More than 5.  He said I just made "Normal" because I said a bunch of "S" words.  LOL So I am normal because I know a lot of "S" words.  Little does he know I just looked around the room and saw a lot of S things.  oh well.  Next he gave me a paper to fill out.  It had a lot of questions about how I felt.  I answered them.  He told me I am moderately depressed.  I don't need a questionnaire to tell me that.  He told me that is understandable considering all I have been through.  It comes and goes.  When things get hard to handle and my shoulders are too feable to ferry the burdens.  I feel sad.  That's really all that's going on.  I don't think its really depression.  I have to go back to finish the test in four more sessions.  Then we will know exactly how many brain cells I have lost.  Wonder how many?